Nov 8 2009 10:20 am
God bless Joshua.
Tom Martineau
Bellevue, Washington, USA
Oct 4 2009 07:32 pm
hello to Joshua and your family. Glad to see you got your dog. I will never forget your couragous story. Thank you for your message and sharing how God has worked in your lives. It has been inspiring.
Jul 1 2009 08:08 am
you are strong keep smiling lil guy!!
:-) :-P :-D
Jun 23 2009 05:19 pm
Recently my family decided to foster a black lab. puppy for the Autism Service Dogs. He is a wonderful dog and we are having the best time with him, beginning to slowly train him to take care of a child like Joshua. I hope it won't be long before Joshua has one of these wonderful dogs in his life to call his own, I'm sure it will transform his day to day life. I have now seen first hand what a great job the Autism Service Dogs are doing and how they will change many lives for the good. I sincerely wish you and Joshua well and hope many people will feel the urge to donate and help Joshua get a dog of his own.
May Our Heavenly Father Bless you all in your life together, he has blessed you with a very special child.
Jun 18 2009 02:30 am
My thoughts are with you and your family.
Jun 4 2009 03:50 pm
Hello, my name is Katie Severs and I am a Manager for Smash Marketing. My boss, Nyden Kovatchev and I were touched by Joshaua's story and are in the business of fundraising. We are currently affiliated with the Fix Our World Foundation but we would love to be in contact with you to potentially work out some fundraising for Joshua's guide dog. My email is katherine.severs@gmail.com, I would love to hear from you to learn more about how we can help your situation. Thank you for this beautiful website, it is nice to see the internet being used for the dissemination of positivity and awareness.
May 29 2009 04:38 pm
Amazing to read about Joshua and the whole family. We are a family of 6, living in central London. We are church ministers and have a church here. Our youngest daughter,Grace, who is 6 years old has Kabuki syndrome. Reading about Joshua is like a mirrow image of Grace. She has a majority of the same conditions. Someone once said to me 'If you serve a God of love how can He let this happen. I replied I do not know, but without His help I wouldn't come through. God is always faithful! He has given us wonderful gifts in our children. Much love Jackyx
May 28 2009 01:18 am
Hello Joshua, and family just wanted to send you all my love and best wishes. I know what its like to have a life threatening illness, I came through "Guillian Barre Syndrome",and although it has left me seriously physically disabled, I am thankfull for everyday I am here to see my family, and friends and to see my grandson grow up. The only advice I can give you is, keep fighting, and enjoy EVERY day.
Lots of Love Angela.
May 19 2009 08:04 pm
Yes you will do well Joshua. You are going to have so much. So many people love you and you will not be let down and your Father the Lord is watching over you. Your friend, Mark
Apr 23 2009 05:40 pm
Dear josh and family I will try my best to rase money at my school to help him get a sircive dog( sorry i can;t spell) anyways i will try my best
Apr 15 2009 08:27 am
Blessings on all members of Joshua's family.
Apr 10 2009 03:17 pm
I have learned about Joshua while reading an article in the Burlington Post written by Jason Misner. What an exceptional boy you have. I had never heard of KS before. I have made a contribution to help with the therapeutic dog. I so hope that one day soon your family will reach this goal. I am so moved by your story & am glad that I got to read about Joshua and that I got to learn about this condition. What a special journey your family is on. Sarah
Mar 1 2009 06:39 am
my goodness sophie
all love to u and your family
im broke at this moment but i know this effort will continue ...for know u have my prayers
steveeo
Feb 28 2009 08:54 pm
Hello Joshua,
God gave us all obstacles to overcome in life,
but he wouldn't have given you this obstacle if he didn't know you could overcome it...
he made you a strong boy Joshua,
and you have support and love to help you along the way.
I will keep you in my thoughts and prayers everyday.
God Bless!
With much love,
Stevie Raye
Feb 13 2009 06:41 am
Hi, Joshua
it is Susie Oliveira Anthony, Mathew and Ashley says Hi to you please we should meet up sometime soon
Love Always Susie OLiveira
Feb 5 2009 01:18 pm
Bonjour Joshua et famille,
I am a French Immersion teacher home from school and always searching for different inspirations. I found you today and wanted to say "un gros merci". Thanks for sharing your lives with us. I am creating a place for children to learn life in a different way and have now received the inspiration from Joshua to follow that dream. Blessings to you Joshua and thank you for teaching the teacher some amazing lessons today.
vancouver island, bc
Feb 3 2009 07:37 pm
what an awesome website you have created to let others know about KS and the journey you are going through I came across your site because my son who is 4 years old was just diagnosed (2-2-2009)so I am try to gather as much information that I can. THANK YOU!!!! so very much Cristina in Tucson,AZ
Jan 31 2009 05:46 pm
What a handsome young man, and two wonderful parents. Thank you for sharing with us.. Kim Husband Rog, daughter Ema and Jake almost 13 years old Kabuki baby - Australia
Jan 18 2009 07:11 pm
What a wonderful website your mom has done for you. You are truly blessed to have her. I am thinking of you. May god continue to bless you.
Jennifer Kellar-Airdrie, Alberta
Dec 16 2008 04:52 pm
hello Joshua i am from your school Janet Lee and I really hope you have a wonderful winter break this Year......God bless you
Dec 1 2008 02:29 pm
You have been blessed by this angel, now the rest of the world can hear his story too. Thank you for sharing.
Nov 28 2008 06:12 pm
May GoD BleSs YoU
~Julie from CaNaDa~
Nov 28 2008 06:11 pm
GOD BLESS YOU!!!!
Nov 27 2008 06:01 pm
May God bless you Joshua and your family. You are a trooper. Prayers go out to you and your family.
Christine
Nov 27 2008 12:57 pm
Such a beautiful site for Joshua. You have done a very amazing job Sophie. Joshua is such an amazing little boy and I hope you are able to get the dog for Joshua. My love and thoughts are with you and your family and I hope you are doing well.
Sarah Sawatsky
Nov 25 2008 07:29 pm
HI JOSH, MAY GOOD BE WITH YOU.MY SON SUFFERS FROM SEIZURES AS WELL. SO WE ARE PRAYING FOR AND WITH YOU. ISAIAH ,MIAMI,FL.
Oct 27 2008 06:36 pm
Hi! My son Benjamin was diagnosed with Kabuki about 2 weeks ago. We finally know after about nine years of testing. I am thankful to our new geneticist for the diagnosis we waited so long for. Nothing has changed, Ben is still the child of my heart. But now we know...
The journey is long. The burden is light. The joy is great.
Oct 26 2008 10:09 am
this is so helpfull my son was born with VSD and a corictation of the aorta and it is truly a waigting game good luck hes a fighter
Oct 25 2008 10:55 pm
thank you for this web site. very informative. i will pass along. my nephew may have KS.
Sep 15 2008 04:45 am
Thank you for this website. Last week We were told that our beautiful son has Kabuki Syndrome. He is 4 with the world at his feet. Even though in reality we have been dealing with the effects of KS more than 4 years, We now have a name for it and I am laying my hands on any information I can.
that's how I came across your site.
We will be fine, I know it like I know the sun will rise in the morning.
Thank you for being inspirational and Courageous.
I hope you and your family's journey becomes ever more easy and happiness found in every single day.
Jo
Aug 26 2008 12:48 pm
May God always be looking over the little children and their parents. You are amazing for all that you do with/for Joshua. I caught this site because of Ronald McDonald house. I have never had to use it, but my relatives have. I started a program with my school: collecting tabs for Ronald McD's house. We collected 87 lbs in one month. That is almost one night stay. Get your local schools involved to help people like Sophie and Joshua. Parents need to be able to focus on the child not where they are laying their head and next meal. Sophie you have amazing strength and a talented artist.
Jun 12 2008 09:19 am
may god bless you and keep you safe it makes my hear fell the love that spechel needs kids need lovng to maney peole in theis world dont under stand how god makes a human the way thay are
all the love to you david houston
Jun 3 2008 06:44 am
Moment like you've endured in your lifetime with your son are moments that many would give up. They'd be left feeling useless and would inturn not want to fight for what's best. They'd pass that responsibility on to someone else, such as, homes for children with needs. I have to say, you're doing a terrific job with your son and you sharing your story I'm sure is going to help many others. Maybe not in every situation you've endured, but even if only one situation is learned from then you've also done a great job with this site. Thank you for sharing this with me and many others who have and will in the future read this. Keep up the GREAT work!!
Best of Luck for your future experiences!!
<3 Shirley <3
May 19 2008 09:50 am
Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go."
Joshua 1:9
be strong mate...
kris.. <3
May 10 2008 04:04 pm
God bless you and your family,Believe in the lord god almighty,As he believes in you.May he be with you always.
Apr 19 2008 04:57 am
This is very amazing! I just graduated from medical school and going into residency. I have never seen anybody like Joshua before. he is truly a bleesing to the family.
Peter
Mar 8 2008 10:39 pm
Hey Joshua!
I bet you are having so much fun in the snow today. Did we ever get a lot! I shoveled my driveway 3 times. That is way too much for me but oh well. Hope you and your family have a wonderful March break. I love your website. :)
- Miss McKenzie
Feb 7 2008 08:24 pm
God Bless you lil buddy. You are a trooper!
Jan 24 2008 07:53 am
Sophie,
Wow is all I can say at this point in time. God is an Awesome God. When there seems like there is no way He makes a way. Your son is a living miracle and I will keep him and your family in my prayers. May God continue to rain down blessings upon your family.
Sarah K. Watsontown Pa
Jan 22 2008 10:35 pm
Sophie, thanks for sharing. I'll ask around at work to see what people know.
Thanks, Greg
Jan 14 2008 03:10 pm
When my nepnew was diagnosed with kabuki syndrome 6 months ago, I watched the video with my sister; that is with his mother, we both cried, and still every time I watch it I cry. I know what kind of a feeling it is from my sister, hard times to the mother and the father. I loved your little lovely boy,so sweet. I am from Turkey, so sorry for my grammar or other mistakes:) I only wanted to write to you. God bless you and your son.
Dec 18 2007 06:18 am
Sophie,
I just visited your site today. We have a beautiful 11 year old daughter Nycole who also was diagnosed with Kabuki Syndrome about three years ago. What a blessing our children are! Thank you for sharing your story and your beautiful artwork with us all.
Lina
Michigan
Oct 21 2007 08:18 pm
Sophie, thank you so much for sharing this with me. I read Joshua's whole page and am so impressed with how far he (and you!) has come already and how many challenges have been met.
Both of your children are so beautiful and you are so very blessed to have them in your life. I'll be sure to check back to the site, but I hope we'll be able to stay in touch also.
Carolyn/Dulcenea
Oct 8 2007 07:36 pm
Thank you for sharing this site with me. And thank you for sharing your faith. God bless you and your loved ones. You will never know just how much you have touch me. Thanks for the Faith. Your Friend Rob-(psycobilly)
Sep 16 2007 08:47 am
Thank you so much for Joshua's story. My daughter, Sabrina, has Kabuki syndrome. You are a blessing to us. You are amazing parents. Your friends, Steve and Kristin from Tennessee
Sep 15 2007 07:56 am
Thank you for sharing your life with us. God bless you in all you do each and everyday. I am happy to know that there are people like Joshua and Sophie, as well as your dad and sister, in this world with us. You make it a better place to be.
love
Stephanie
PD group
Sep 13 2007 03:48 am
Sophie,
What a great site! Loved the You Tube tribute! Perhaps I'll get up the energy to do one for Demi one day.
Debbie, in Georgia
Sep 12 2007 08:14 pm
What a beautiful site! The movies are very touching :) Joshua gives me inspiration for my daughter. Thank you for sharing.
Kim and Alexis from United States
Sep 11 2007 12:25 pm
Dear Sophie,
What a great site, good work! Congratulations Joshua for your drawing it is beautifull!!!
Maica & Nina from Argentina
Sep 11 2007 11:01 am
What a great site, Joshua looks great!
Thank you for sharing it with us all.
Your friend,
Karen from England
